When a loved one is in need of help — whether it be a ride to a doctor’s appointment or an organ donation — chances are, you’ll drop anything to help them. But anxiety or concern for your loved one means you may not consider the financial implications of helping.
Let’s take Jade, for instance. Jade lives in Billings, Montana with her husband and two children. Her older brother is 55, lives in New York City and has polycystic kidney disease. If he doesn’t get a kidney transplant, he will need dialysis. Jade is ready and willing to help her brother by donating a kidney, but now that the procedure is booked she’s learning that it will cost her thousands to have the full scope of care she needs and she’s worried she’ll go broke in the process.
Breaking down the costs
The medical costs associated with kidney donation — such as surgery and hospitalization — should be covered by the recipient’s insurance plan, whether it is through an employer, Medicare or Medicaid. If the recipient doesn’t have any insurance, there are organizations that fundraise for organ transplant surgeries that may be able to help offset the cost. Beyond the medical component, there are additional costs such as travel expenses, childcare and potential lost wages due to time off work that can come along with donating an organ.
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For Jade to travel from her home in Montana to New York City where her brother lives and is having surgery, it will cost between $300 to over $600 round-trip depending on the time of year she travels and the flight options.
If she decides to bring her husband with her to help take care of her before and after the surgery, it will double the flight costs. Luckily, she was able to get paid time off work from her corporate 9-5, but her husband has to accept the lost wages to go with her as he does shift work and doesn’t have paid time off in his contract. Jade and her husband will also have to pay for childcare while they are away from Montana since the surgery is scheduled during a school week.
All this adds up fast and now Jade is looking at spending thousands of dollars to donate her kidney. And she’s not alone in this — a 2016 article in the American Journal of Transplantation found that 89% of living kidney donors had a net financial loss in the 12 months following donation, with 33% reporting a loss exceeding $2,500. While there aren’t many up-to-date studies on the matter, the American Society of Transplantation wrote in its Living Donor Toolkit that living donors may spend an average of $5,000 related to their donation in direct and indirect costs.
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Offsetting the cost of kidney donation
While it might seem daunting, Jade does have some options that can help her offset the costs.
For starters, there are programs for living donors that provide financial assistance. Jade should talk to her and her brother’s surgery team to help explore the options available and make sure she has all the necessary information. Here are a few options that she might want to look into:
- The National Living Donor Assistance Center can cover up to $6,000 of travel costs, lost wages and dependent care costs if you donate at any transplant center.
- The National Kidney Registry’s (NKR) Donor Shield program offers up to $6,000 for travel and dependent care costs and up to $2,000 per week in lost wage reimbursement if you are involved in an NKR swap between certain transplant centers.
- The Meredith Haga Foundation has a Living Donor Financial Assistance Program that can help reimburse the costs of things like travel expenses, daycare and post donation support services. There is no application for this program, but your care team can refer you.
Of course, it can be hard to anticipate being a kidney donor, but one of the best ways to offset the costs of organ donation — or any other medical necessities and procedures — is by having an emergency fund. The typical advice is to have three to six months’ worth of living expenses in your emergency fund. In Jade’s case, having an emergency fund would mean she already has enough saved to help pay for her flights and childcare if she can’t get it covered by any financial assistance programs.
It is easier said than done to save an emergency fund, but the sooner you start — no matter how small — the sooner you’ll have extra cash that can save you during stressful times.
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Em Norton is a Content Specialist at moneywise.com. They have been with the company since 2022.
