Caring for a sick child with a rare medical condition is stressful enough. But Brooklyn resident Nadine Friedman also found herself stuck with a $27,000 surgery bill — despite having insurance.
Friedman’s 9-year-old son, Ozzie Roberts, has Goldenhar Syndrome, a congenital condition that results in bones and muscles forming improperly on a child’s face. For Roberts, it resulted in problems with his right ear, including pain, redness and growth issues.
“A lot of the nights during the week, just midway through the night, [he was] just crying, screaming,” Friedman told CBS. “It was really tough to see.”
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Roberts received surgery to fix his ear — but Friedman’s insurance provider, Aetna (which is owned by CVS Health), wouldn’t cover the cost. That left Friedman’s family stuck with almost $30,000 they shouldn’t have had to pay.
Here’s how Friedman successfully got Aetna to pay for the surgery — and what you can do if you’re facing an insurance bill you feel should have been covered.
Becoming a ‘part-time insurance lawyer’ to fight the denial
Roberts got ear-pinning surgery, a procedure that involves moving someone’s ears closer to their head. It’s a form of plastic surgery that some people get to improve their appearance. But for Roberts, the surgery was medically necessary.
Aetna still denied the claim, saying the procedure was cosmetic. Friedman appealed the decision and was again denied, even though Roberts’ doctors wrote Aetna telling them the surgery was needed.
“I would absolutely never do anything like this unless it absolutely impeded on his health and his life,” Friedman told CBS.
Aetna told CBS that Roberts’ “original submitted billing code is typically for coverage of a cosmetic procedure and warranted further review.”
Friedman isn’t alone. According to Muni Health, Aetna denied 22%, or one in five, in-network ACA marketplace claims in 2023 — just over the national average of 20%. That means Aetna denied over one in five in-network claims.
Eventually, the family filed for an external review with the state of New York. A third-party organization would look over the claim and decide whether or not to reverse the denial.
The external appeal worked. After months of working to get the denied claim repealed, Friedman would no longer have to pay for the surgery herself.
“Which is great, but it’s only because I have a flexible job, time to document these things,” Friedman told CBS. “In the end, you have to become, like, a part-time insurance lawyer, basically, to do these things.”
When asked for comment, a CVS spokesperson referred Moneywise to the trade industry group AHIP. AHIP told Moneywise that claims denials are generally reviewed by a clinical or claims processing team member, but it was unable to speak about the specifics of Aetna policy.
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How you can get outside help to fight denied health insurance claims
If you’ve tried to appeal a denied claim with your health insurance without luck, a way forward is possible.
Your next best step might be to file an external review, as Friedman ultimately did. If your claim was denied due to one of these reasons, you qualify:
- Your insurer made a medical judgement your doctor disagreed with, such as Friedman’s case;
- Your insurer denied the claim because it said the treatment was experimental; or
- Your insurer said you lied or left out information when you applied for coverage.
If you qualify, you’ll need to file within four months of your insurer’s final decision.
Your next steps depend on where you live. Almost every state has their own external appeals process, but if your state doesn’t, you can file with the federal government directly.
Check to see what your state’s specific review process is. The federal process is free, as are most state processes. If the process isn’t free, it will likely be affordable; the most states can legally charge you is $25 per external review.
Still, the process is complicated. If you’re struggling to navigate the external appeals process, look to see if your state has government programs or nonprofits designed to help people navigate the system.
For example, consumer assistance programs are state-level organizations designed to help consumers deal with health insurance problems. The Centers for Medicare & Medicaid Services website can help you find one in your state, if available.
If not, it can point you toward other organizations that could help.
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Kit Pulliam is a DC-based financial journalist with over five years of experience writing, editing and fact-checking financial content.
