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Health Insurance
Elijah Jackson receiving cancer treatment. Kasey Jackson via USA Today

Family of Missouri child receiving cancer treatment told their local hospital will stop accepting ACA Marketplace plans starting Jan. 1

Kasey Jackson says her family’s Affordable Care Act (ACA) coverage runs $3,000 a month — and starting Jan. 1 the hospital treating her 13-year-old son’s leukemia will no longer accept the marketplace insurance.

“I am very angry right now,” Jackson said in a TikTok that more than 400,000 people have watched. According to USA Today, Jackson’s son, Elijah, was diagnosed with acute lymphoblastic leukemia at the age of 8 and relapsed in July 2025. He has about a year of treatment left, which out-of-pocket will cost hundreds of thousands of dollars. The next-closest hospital offering his treatment, Jackson said, is roughly 200 miles away.

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Jackson, her husband, and their children have been on ACA plans for years, but the family found out in October from their insurance broker that Children’s Mercy Hospital in Kansas City, Missouri, will no longer accept her ACA plan starting in January.

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Why the hospital is going out of network

In an Oct. 20 post on Instagram, Children’s Mercy Hospital said it was not its decision to stop accepting ACA plans.

“Children’s Mercy wants to participate in ACA Marketplace networks serving our area,” the post reads. “However, the health plans have chosen not to include Children’s Mercy as an in-network provider. This was not a decision made by Children’s Mercy.”

In a statement to KCTV5, the insurance company Medica said it made the decision to leave the state of Kansas and Kansas City, though the exact reason for the departure is unclear. Children’s Mercy Hospital says it is continuing to speak with plans to be included in coverage networks.

Claims data shared with KCTV5 showed 274 children received care in 2026 at Children’s Mercy Hospital under the plan that is being discontinued. Medica says most of those claims were routine, one-time services. However, the hospital says approximately 400 current patients are covered by the Medica ACA Plan.

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What families are weighing

Fortunately, Jackson said her family can afford to pay out of pocket. However, that isn’t the case for most families.

According to a June survey by West Health-Gallup, fewer than half of Americans said they can afford healthcare when and where it’s needed. More Americans are also struggling with the surging cost of insurance, with ACA marketplace insurers proposing a potential 15% increase in 2027, according to KFF.

Jami Woods, whose 14-year-old daughter has a hip operation planned for May 2027, told USA Today she believes it would cost her family about $200,000 without coverage. She’s thinking of returning to school to qualify for insurance. Her husband, Colin, said he doesn’t want to weigh leaving the hospital “to save $50,000” while his daughter is in pain.

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Possible options for families

Out-of-network care can get expensive fast. HealthCare.gov says the out-of-pocket limit doesn’t include out-of-network care, so those bills may not be capped.

To soften the blow, families can ask their plan for a network exception. According to Children’s Mercy Hospital, many plans have an approval process for out-of-network care, though approval isn’t guaranteed. The hospital will work with insurers on services booked or expected next year. They can also compare plans before open enrollment ends. HealthCare.gov lists Nov. 1 to Jan. 15, with a Dec. 15 deadline for coverage that starts Jan. 1.

Considering employer-sponsored coverage or plans sold outside the marketplace may help. The hospital lists employer insurance as a replacement option for families on the Medica plan, and Missouri’s insurance director recommends looking into both if they’re available to you.

Families can also check children’s Medicaid. For example, Missouri’s Department of Social Services sets the limit for kids ages 1 to 18 at 148% of the poverty level, or $48,840 for a family of four. The hospital’s financial counselors can evaluate Medicaid eligibility and tell you whether you qualify for the hospital’s own aid. Coverage varies by state and families should check to see what options are available to them.

If your plan is discontinued and your insurer doesn’t offer a similar one, HealthCare.gov says the Marketplace moves you to a comparable plan, but you can switch until enrollment closes.

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With a writing and editing career spanning over 15 years, Emma creates and refines content across a broad spectrum of industries, including personal finance, lifestyle, travel, health & wellness, real estate, beauty & fitness and B2B/SaaS/tech.

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