Nebraska woman spends $240K/year on care for husband with Alzheimer’s — twice the cost of a private room in a nursing home facility. How aging at home is crushing Americans' finances

Christine had looked into a memory care facility for Jimmy, but wasn’t satisfied that it was the right environment for him. That left their home as the only viable option. But it meant she had to take on the crushing expense and exhausting time commitment of being responsible for Jimmy’s needs.

Now, Christine pays about $240,000 a year to employ a team of five people for his 24-hour, in-home care — and runs it as though she’s running a small business. She hires, fires and supervises staff, handling payroll, taxes and time sheets. When a worker quits or misses a shift, she fills in. Christine told the Journal that she’s fortunate because they can afford the care, but she never feels truly free.

The cost of home care can be crushing

Many of us would like to live out the last years of our life like Jimmy — in the comfort and familiarity of our own home. In fact, when surveyed, about three-quarters of adults 50 and older said they want to age in place for as long as possible.

But if you become sick, disabled or otherwise unable to fully care for yourself, the cost of care at home can be extraordinarily expensive — and put a strain on your family. During their lifetime, 70% of people will need help performing daily activities, such as bathing, eating and using the bathroom. So having a plan for long-term care should be an essential part of your retirement planning.

The cost of home care varies greatly depending on where you live, how much care a person needs and what type of caregiver is employed. In 2023, the national median hourly cost for a home health aide was $33, according to Genworth Financial. That means the median cost for year-round, 24-hour care would be about $290,000. This is substantially more than the $117,000 annual median cost of a private room at a nursing home or $64,000 annual median cost at an assisted living facility.

Given that the average retirement savings for people 60 and older is only $185,000, and that the average monthly Social Security benefit retired workers receive is $1,920, long-term care costs can be a stretch for many retirees. It may be a good idea to talk to a financial planner about your retirement plans — whether you plan to age in place or move into a long-term care facility — so you can plan appropriately.

Other options: Government programs and insurance

When planning for long-term care expenses, it’s worth exploring government programs that may be available to help. For example, Medicare may pay for some short-term care costs and certain medical supplies, while many states and the Department of Veterans Affairs also have programs that may provide some assistance.

The eligibility criteria and assistance available from Medicaid vary from state to state. For instance, some states may provide assistance to individuals who are medically needy, even if their income is too high to otherwise qualify. Medicaid may also provide stipends for friends or family acting as caregivers.